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1.发明申请公开(公告)号：US20180046753A1
公开(公告)日：2018-02-15
申请号：US15560562
申请日：2016-03-23
发明人： Robert Shelton
摘要： A system, method and apparatus for enabling individuals to determine their sharing, privacy, and data access preferences and conditions for disclosure of bioinformatic data, including whole genome sequence data over a network. In combination with a privacy preferences repository and policy repository for expressing legal and institutional criteria for accessing such information, a private access bureau enables such privacy requirements to be addressed while simultaneously enabling broad sharing of such data by and with properly authorized parties or applications. Through the use of various forms of metadata, encryption, and globally unique IDs that accompany such data elements, discrete segments of said data can be queried; and where permissible discovered, accessed, analyzed, viewed, linked with other health data and contact details, used, and/or exported based on pertinent privacy laws, institutional policies, and the individual's preferences that are associated with, and dynamically controlled through, an intuitive user interface.
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公开(公告)号：US20170186123A1
公开(公告)日：2017-06-29
申请号：US15400566
申请日：2017-01-06
申请人： Private Access, Inc.
发明人： Robert Shelton
CPC分类号： G06Q50/265 , G06F16/951 , G06F21/6245 , G06Q10/00 , G06Q20/102 , H04L63/10 , H04L63/20
摘要： A system and method for controlling access to private information over a network is provided including a privacy preference repository accessible by one or more subjects of the private information and by a private access bureau. The privacy preference repository stores privacy preferences configured by the subjects to indicate conditions for disclosure of said private information. A policy repository that stores legal criteria for accessing the private information is also accessible by the private access bureau. The private access bureau is configurable to receive requests from privacy-enabled systems for privacy directives that take into account the privacy preferences and legal criteria required to release particular documents on said privacy enabled system in response to the privacy-enabled systems.
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3.发明授权公开(公告)号：US10796782B2
公开(公告)日：2020-10-06
申请号：US15560562
申请日：2016-03-23
发明人： Robert Shelton
摘要： A system and apparatus for enabling individuals to control the sharing and disclosure of their bioinformatic data, including whole genome sequence data over a network. In combination with a privacy preference repository and policy repository for expressing legal and institutional criteria for accessing such bioinformatic information, a private access bureau enables such privacy and policy requirements to be applied while simultaneously enabling sharing of such bioinformatics data by properly authorized parties or applications. Through the use of various forms of metadata, encryption, and unique IDs that accompany such data elements, discrete segments of said bioinformatic data can be queried; and where permissible discovered, analyzed and linked with other health data based on pertinent privacy laws, institutional policies, and the individual's preferences that are associated with, and dynamically controlled through, an intuitive user interface.
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4.发明申请公开(公告)号：US20210210160A1
公开(公告)日：2021-07-08
申请号：US17024973
申请日：2020-09-18
发明人： Robert Shelton
摘要： A system, method and apparatus for enabling individuals to determine their sharing, privacy, and data access preferences and conditions for disclosure of bioinformatic data, including whole genome sequence data over a network. In combination with a privacy preferences repository and policy repository for expressing legal and institutional criteria for accessing such information, a private access bureau enables such privacy requirements to be addressed while simultaneously enabling broad sharing of such data by and with properly authorized parties or applications. Through the use of various forms of metadata, encryption, and globally unique IDs that accompany such data elements, discrete segments of said data can be queried; and where permissible discovered, accessed, analyzed, viewed, linked with other health data and contact details, used, and/or exported based on pertinent privacy laws, institutional policies, and the individual's preferences that are associated with, and dynamically controlled through, an intuitive user interface.
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